https://www.opentreatments.org/blog daily 0.75 2021-12-22 https://www.opentreatments.org/blog/blog-post-title-one-6x97m monthly 0.5 2021-12-22 https://www.opentreatments.org/home daily 1.0 2021-10-04 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612836423276-7L1TK3CYMHI9H1B91BYY/opentreatments-logo-37.png Home - Our Mission Our Goal, Vision and Commitment https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612836466224-3YUDC9IUOU9LCDY866FL/opentreatments-logo-33.png Home - Get Involved Partner, Volunteer and Donate https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161785723-TER127EQKU2DI29FDG9Y/Open+Treatments+Website-01.png Home - Our Platform A software to accelerate treatments https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612816700230-SNT57Y5FS8FVLDHGQLS6/image.jpg Home - Empowered to take action When it comes to finding treatments for rare diseases patients lead the charge. Without a formal background, they must learn biology, speak like a scientist, raise millions of dollars, conduct research, and move mountains to find a treatment. They are often asked to make life-altering decisions without much background, or support. OpenTreatments Foundation empowers these patient organizations by giving them the software tools to make the right decisions at the right time, with a system of support. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612822102887-HDI1W9KCA7G4G6JV7XPC/Screen+Shot+2021-02-08+at+2.08.01+PM.png Home - Simplify the maze Patient organizations are left to navigate the complex treatment development maze. Each patient group creates their own research program without a deep understanding of the risks, benefits, and pitfalls of their decisions. OpenTreatments platform simplifies the maze by bringing in real-world experience along every step leading to faster treatments. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208268279-XQT3LFR0GFEFF3OST4G1/Untitled+design+%286%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208056952-526IH722P0LCJ0YCYL34/Untitled+design.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208129697-5UYGRES8YUN0WWBTX5X9/Untitled+design+%282%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208161702-U5J6MLIJC75ATEOFMJTV/Untitled+design+%283%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208294290-CZWXM1FQ5B34230JRV9L/Untitled+design+%287%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208098156-3QFVKYTCXGPR61JA0ZYR/Untitled+design+%281%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208202599-Y6LB0KJ74J2F0EIJ7Q0O/Untitled+design+%284%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617208241410-QNNQ0DJYTGCHQJ8YIR24/Untitled+design+%285%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612834068967-80F1Y2HIBHSVQM31108W/Frame+356.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617231963173-87POPMNEUKHS61S8AAMU/Untitled+design+%2814%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617232258251-YK0YRL6K4V4LH46Z6TF6/Untitled+design+%2815%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617232392273-HBGMR50KA48RT6OFNBGF/Untitled+design+%2817%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617232332603-QUK92YZ6ZEUR664PQWEC/Untitled+design+%2816%29.png Home https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617227295337-BP434FZ7HOOM1463L0A7/Screen+Shot+2021-03-31+at+2.47.56+PM.png Home - "OpenTreatments will enable IDefine to accelerate our mission by distilling down the necessary steps in the development of a gene therapy program into a concise and approachable plan" - Geoff Rhyne Co-Founder and CEO of IDefine, a patient-led organization tackling Kleefstra Syndrome caused by mutations in EHMT1 gene. https://www.opentreatments.org/what-we-stand-for daily 0.75 2021-03-08 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612819326967-DI85Y80726ZE1AK9U3E2/image-asset.jpeg What we stand for - We are non-profit organization with a mission is to enable treatments for all genetic diseases regardless of rarity or geography using the OpenTreatments software platform. We will decentralize drug development and empower patients, families, or motivated individuals to create a treatment for a disease impacting their loved one. We will enable the hand off of these therapies to commercial/governmental/philanthropic entities to ensure patients around the world get access to the therapies for the years to come. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615142729054-W3NNDEICC7K5SZXHJUTT/Open+Treatments+Website-13.png What we stand for https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615142741406-6S7N9YCEJ2O9LSZ00NB1/Open+Treatments+Website-15.png What we stand for https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615142751865-OAS23DE7JGISMIS4P2UP/Open+Treatments+Website-14.png What we stand for https://www.opentreatments.org/board-of-directors daily 0.75 2021-03-08 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161903171-9C5N647NSW21I69HC7M7/2021-03-07.png Board of Directors - Sanath Kumar Ramesh Founder & CEO of OpenTreatments Foundation Sanath is a bold and visionary software leader, open source pioneer and a rare disease drug developer. In his career, he has built and launched several successful open source software products. He is now using open source software to enable treatments for 400 million patients worldwide affected with rare genetic diseases through his non-profit organization, OpenTreatments Foundation. He is building the world’s first software platform to decentralize drug development and empower anyone in the world to create a treatment for a genetic disease. He is also the father of a 2 year old boy who is one of 9 kids worldwide with an ultra-rare genetic disease called SSMD (curegpx4.org) https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161919764-S9GGM41KIV8KB5ISG1EH/Open+Treatments-07.png Board of Directors - Plavi Mittal Dr. Mittal is the Founder, and the former President and CEO of the Jain Foundation, for 13 years from (2005 -2017) focused on a cure for an orphan disease, called Dysferlinopathy. Under her leadership, the Jain Foundation funded ~$50M towards diagnostics, research and clinical trials of this disease. The Jain Foundation’s operating model is emulated by many other rare disease foundations. She earned a Ph.D. in Biology from Brandeis University and performed postdoctoral work in molecular oncology at Harvard Medical School. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161935080-M7DOICJOYY4V8ZPEXZW6/Open+Treatments-08.png Board of Directors - Ethan O. Perlstein Ethan is a biotech entrepreneur and genetic disease cure sherpa. In 2014, Ethan founded Perlara PBC, the first biotech public benefit corporation that is co-developing new treatments of genetic disease in joint venture partnership with highly motivated families. In addition to being CEO of Perlara, Ethan is the CEO of the recently formed joint venture spun out of Perlara called Maggie’s Pearl, which is developing epalrestat as a platform therapy for congenital disorders of glycosylation (CDG), starting with PMM2-CDG. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161949395-XSQTI785PKMTK4YMOH2D/Open+Treatments-09.png Board of Directors - Julia Vitarello In December 2016, Julia founded Mila's Miracle Foundation (MMF) upon learning that her seemingly healthy six-year-old daughter Mila had Batten disease, a devastating genetic condition. In an unprecedented collaboration led by Julia and Dr. Timothy Yu from Boston Children’s Hospital, Mila became the first person in the world to receive a drug tailored to just one person - affectionately named milasen. Driven by a sense of hope and obligation, Julia is on a mission to ensure that truly personal medicines become accessible to children across hundreds of rare diseases who otherwise would have no chance. Through MMF, Julia has also initiated the work toward a novel gene therapy targeting the MFSD8/Batten CLN7 gene, hosts scientific meetings, funds basic science projects in the US and Europe, and speaks at scientific meetings and conferences across the country. https://www.opentreatments.org/platform daily 0.75 2021-10-04 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612832447238-3L29PME66ZO83C2TYZ1K/Frame+356.png Platform Build your treatment roadmap in minutes Create a roadmap for a gene therapy treatment within minutes. Identify upcoming milestones and plan ahead to secure funds and resources needed to drive your project ahead without stalling. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1612831789250-JHD1NXJR1JM2ZTX69X7O/Open+Treatments+Website-12.png Platform Get access to an expert science team in a hop Not sure the right animal model for your disease? Unsure who will be able to help you get to the next step? Our expert science team is available to talk through the pros and cons and recommend the right next steps for you. https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615161581372-9A2BBEP7SKK4E3VGWMKI/Open+Treatments+Website-11.png Platform https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234293972-15RXKT4T19ERLHCIA30C/Untitled+design+%2815%29.png Platform https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234301333-MOTFLC4J2DCPPR3VDPOT/Untitled+design+%2816%29.png Platform https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234285151-7MAHLBBFAMRPE22XM6TN/Untitled+design+%2814%29.png Platform https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234308162-75DX6ACRL6JCMDL1D9PN/Untitled+design+%2817%29.png Platform https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617202407587-4XNJHU75NEDGUHPT99GI/Untitled+design+%283%29.png Platform https://www.opentreatments.org/contact-us daily 0.75 2021-03-07 https://www.opentreatments.org/contribute daily 0.75 2021-02-19 https://www.opentreatments.org/join-waitlist daily 0.75 2021-03-31 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234624804-C2ADLI0XYX1NJ5T3QGF7/Untitled+design+%2817%29.png Join Waitlist https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234615110-1HTXLDFXVJ45DOTCRZHV/Untitled+design+%2814%29.png Join Waitlist https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234618426-I67C13CCKD4CS1A681KG/Untitled+design+%2815%29.png Join Waitlist https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617234621881-PAZ63KQFSAISGTIQ2ZYR/Untitled+design+%2816%29.png Join Waitlist https://www.opentreatments.org/advisors daily 0.75 2021-03-07 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615157529596-HIP9TYQ4YINI26KV69F7/Jude+Samulski_2020_H%26S600px.jpg Advisors - Dr. Jude Samulski President, CSO & Co-Founder of AskBio Read Bio https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615157573377-AN4WJTAV4XKBQHHQMEC3/1_GWjUPvCmo49DGDtZThXVkg.jpeg Advisors - Dr. Matt Might Director of the Hugh Kaul Precision Medicine Institute at the University of Alabama at Birmingham Read Bio https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615158130673-F3WVJVOF1MCJEYH4L5XR/639_Ian.jpg Advisors - Ian Estepan Executive Vice President, Chief Financial Officer at Sarepta Therapeutics Read Bio https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615158281145-XAXXIYAK47VZ9W6CFWJG/unnamed.jpg Advisors - Swami Sivasubramanian VP, Amazon AI Read Bio https://www.opentreatments.org/team daily 0.75 2021-03-08 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615159163873-P4SZPG0LA6H7AW29UD9F/1519892877446.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160698555-7ZDXP6Y5N0RE7Y3RUJWZ/15953242.png Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615159152713-F69LCAJFNED25WE46QXD/Brett.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615159174294-GTVS7BZ5HU6817DAZ97L/1516970270718.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615159843351-G17ZZ4J4OPORF5WBF7PO/1520707278610.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160003862-48JYWPPF8C5N5GSKP585/David.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160016923-WDPJCMNFDYULDNH6FMCL/0aC_6TEM.jpg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615159715118-ZLIVDOR1VQYPYN9FIX0O/Ashley.jpg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160425360-8U0ONUPXYQGVGU9BRZRT/1572357633859.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160445491-I2N2S7DY1FLJ4RXH0A3X/1516313210940.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160399682-MBHIL9XO6ZFDHG1NUB4H/1517666366570.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160411570-PQIWATC0U1EQQ5IL9WPD/1519339574765.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160609039-3FQOFI6LDKHPBS3NBOG1/Jordan_Barrish.jpeg Team https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1615160621457-QZ1E07SQ2AGZWSTOIVZM/151304124_1632231133626867_7446129657543700348_o.jpg Team https://www.opentreatments.org/press daily 0.75 2021-05-15 https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617212275818-0OEIG2XDL03OJT47KZG5/Untitled+design+%289%29.png Press The Linux Foundation Hosts Project to Decentralize and Accelerate Drug Development for Rare Genetic Diseases https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617212268343-TD6AUPOH8WLLDLMZR4GM/Untitled+design+%288%29.png Press OpenTreatments Foundation Launches Software to Decentralize and Accelerate Drug Development for Rare Genetic Diseases https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617578782314-PRTYQRH6G0D7DC3PB9OZ/Untitled+design+%2810%29.png Press A new collaboration demonstrates how tech can help understand rare diseases https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617225925054-WZYI8FR7CWSEYLJFSX5X/Untitled+design+%2810%29.png Press Software engineer bets on technology to help speed rare disease treatments https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617225938155-OZYFJ26W5DPHFOM6I0ID/Untitled+design+%2811%29.png Press Linux Foundation hosts RareCamp open-source platform to democratize gene therapy https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617226928322-V7KV9WE7XC3KMFXBXS4V/Untitled+design+%288%29.png Press Linux Foundation and OpenTreatments Foundation team up to fight rare genetic diseases https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617578687926-BTZDQH73C390IW4O1H65/Untitled+design+%289%29.png Press Tech-savvy dad launches open-source platform to save children with rare diseases – including his son https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1621049863390-U3H1AB0F1ZZGJ2XSTZKX/geekwire.png Press - Make it stand out How this tech engineer is using his son’s rare disease as inspiration to disrupt drug development https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617226269984-8ETDADR6ZJLVKJ4IQPA6/Untitled+design+%2813%29.png Press A Software Platform to Give Patients the Tools to Build Treatments for Rare Genetic Diseases https://images.squarespace-cdn.com/content/v1/6015d8482e514a5b86ebe060/1617226227985-CLYRGHTIMBMU68WF08U6/Untitled+design+%2812%29.png Press OpenTreatments Foundation: Democratizing and Decentralizing Drug Development https://www.opentreatments.org/press-release daily 0.75 2021-03-31